Latest Breaking News On - World rare disease day - Page 4 : comparemela.com

NEW DELHI, Mar 6: In order to commemorate World Rare Disease Day, the Organization for Rare Diseases India (ORDI) would organise the 8th edition of Racefor7 on March 12 in New Delhi. The annual event by ORDI would raise awareness about the rare disease community and advocate better policies and access to treatment for rare disease patients. Speaking at the event, Dr Neerja Gupta, Additional Professor, Division of Genetics, Department of Pediatrics, AIIMS, New Delhi said “Rare diseases now have […]

Uttar pradeshAndhra pradeshNew delhiWest bengalTamil naduSamir sethiNeerja guptaPrasanna kumar shirolNational rare diseaseIndian rett syndrome foundationAdvocacy committeeDivision of geneticsNational policy for rare diseases prasanaDepartment of pediatricsOrganization for rare diseases indiaWorld rare disease day