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Rare Disease Day 2024: Spotlight on Rare Infectious Diseases

Rare Disease Day on February 29, 2024, shines a global light on the impact of rare diseases, including rare infectious diseases. With a focus on early diagnosis and treatment access, this day highlights the struggles of those with rare conditions.

European organization for rare diseasesInfection control todayRare disease monthDisease dayEuropean organizationRare diseasesRare disease dayGaucher diseaseOsteogenesis imperfectaRetinitis pigmentosaProtein kinaseRare disease

Rare diseases interview with Clincierge s CEO, Scott Gray

February will see the 16th annual Rare Disease Day which raises awareness of the more than 7,000 identified rare diseases worldwide.

Scott grayNational institutes of healthEuropean organization for rare diseasesRare diseases clinical research networkEuropean organizationRare diseasesNational institutesClinical developmentPreclinical researchContract manufacturing amp logisticsAtient centricityContract sales amp marketingData managementRare diseaseOrphan diseaseClinical trials

Global Orphan Drugs Market Research Report 2023: Market to Reach $415 2 Billion by the End of 2028 - Premium Pricing of Orphan Drugs and Increasing Collaborations/Licensing Agreements Bolsters Growth

/PRNewswire/ The "Global Markets for Orphan Drugs" report has been added to ResearchAndMarkets.com s offering. The global orphan drugs market was valued at.

South koreaUnited statesBristol myers squibbLaura woodEuropean organization for rare diseasesTakeda pharmaceutical coMerck coAbbvie incTechnology backgroundAstellas pharma incEisai coPfizer incOffice hours callOffice of orphan products developmentEli lilly and coAstrazeneca plc

Letter: Awareness, advocacy needed for those with hereditary disorders of connective tissue

Lisa Mouche, the mother of two daughters with hereditary disorders of connective tissue, writes that more awareness will improve patients' treatment options.

United statesSarah lazarusJay dahlBrooke feltmanLinda bluesteinNational academieNational academies of scienceUs social security administrationEssentia healthEuropean organization for rare diseasesLoeys dietz syndromeGolden stethoscopeSecurity administrationMayo clinicEuropean organizationRare diseases

Larimar Therapeutics Appoints Dr Jeffery W Sherman to its Board of Directors

Larimar Therapeutics Appoints Dr Jeffery W Sherman to its Board of Directors
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United statesSan franciscoStanford universitySquibb bristol myersCarole ben maimonSearle pharmaciaJoyce allaireJefferyw shermanJeffreyw shermanMichael celanoTranslational researchXeris biopharma holdings incCompany board of directorsClinical trial transformation initiativeLarimar therapeutics incCompany contact