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Get latest articles and stories on Business at LatestLY. New Delhi [India], July 1: The experts at the Rare Disease Summit emphasised the need for patient registry for accessible treatment opportunities for rare disease patients while deliberating on the various aspects of rare disease management in the country. The summit was organized by the health think tank, Integrated Health and Wellbeing Council in collaboration with AstraZeneca to create awareness on rare diseases and their effective management. Business News | Better Regulatory Mechanism and Patient Registry; a Must for Rare Disease Management; Experts at the IHW Council Rare Disease Summit.
NEW DELHI, Mar 6: In order to commemorate World Rare Disease Day, the Organization for Rare Diseases India (ORDI) would organise the 8th edition of Racefor7 on March 12 in New Delhi. The annual event by ORDI would raise awareness about the rare disease community and advocate better policies and access to treatment for rare disease patients. Speaking at the event, Dr Neerja Gupta, Additional Professor, Division of Genetics, Department of Pediatrics, AIIMS, New Delhi said “Rare diseases now have […]