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Parents of children with rare disease want clinical trials to save their children. Many become advocates. Even if they die, participating in research adds meaning. ....
Parents Of Kids With Rare Diseases Want Clinical Trials For Treatment today.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from today.com Daily Mail and Mail on Sunday newspapers.
It took over three decades to unravel the mystery – a 2010 diagnosis revealed Jansen s, a disorder caused by a gene mutation that distorts bone growth. ....
This Nebraska Mom and Her Two Sons Have One of the Rarest Diseases in the World: 'Pain Is Part of Our Every Day' (Exclusive) yahoo.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from yahoo.com Daily Mail and Mail on Sunday newspapers.
Why Can't People with RARE Diseases & Wheelchairs Fly Major Airlines? globalgenes.org - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from globalgenes.org Daily Mail and Mail on Sunday newspapers.