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Many parents of kids with rare diseases fight for research — even if it's too late for their child

Parents of children with rare disease want clinical trials to save their children. Many become advocates. Even if they die, participating in research adds meaning. ....

United States , Al Qahirah , United Arab Emirates , Pamela Gavin , Huda Zoghbi , Dolly Parton , Harald Jueppner , Dina Agami , Sarah Stewart , Mary Mitchell , Richard Engel , National Organization For Rare Diseases , National Institute Of Health , National Institute , European Journal , Orphan Drug Act , National Organization , Rare Diseases , Orphanet Journal , Rare Disease , Massachusetts General Hospital , Zein Elsharqawy , Chief Foreign Correspondent Richard Engel , Dan Duncan Neurological Research Institute , Texas Children , Clinical Trial ,

Parents Of Kids With Rare Diseases Want Clinical Trials For Treatment

Parents Of Kids With Rare Diseases Want Clinical Trials For Treatment
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United States , Al Qahirah , United Arab Emirates , Mary Mitchell , Dolly Parton , Henry Engel , Sarah Stewart , Neena Nizar , Pamela Gavin , Richard Engel , Huda Zoghbi , Jansen Metaphyseal Chondrodysplasia , Harald Jueppner , Dina Agami , National Organization For Rare Diseases , National Institute Of Health , Jansen Metaphyseal , National Institute , European Journal , Orphan Drug Act , Jansen More , National Organization , Rare Diseases , Orphanet Journal , Rare Disease , Massachusetts General Hospital ,