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Many parents of kids with rare diseases fight for research — even if it's too late for their child

Parents of children with rare disease want clinical trials to save their children. Many become advocates. Even if they die, participating in research adds meaning. ....

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Parents Of Kids With Rare Diseases Want Clinical Trials For Treatment

Parents Of Kids With Rare Diseases Want Clinical Trials For Treatment
today.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from today.com Daily Mail and Mail on Sunday newspapers.

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This Nebraska Mom and Her Two Sons Have One of the Rarest Diseases in the World: 'Pain Is Part of Our Every Day' (Exclusive)

This Nebraska Mom and Her Two Sons Have One of the Rarest Diseases in the World: 'Pain Is Part of Our Every Day' (Exclusive)
yahoo.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from yahoo.com Daily Mail and Mail on Sunday newspapers.

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WebMD Health Heroes: Neena Nizar

Meta/User Description A tireless search for her own diagnosis and her sons pushed her to create The Jansen s Foundation, an organization that brings awareness, research funds, and hope for a cure to this rare and debilitating skeletal condition. ....

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