It took over three decades to unravel the mystery – a 2010 diagnosis revealed Jansen s, a disorder caused by a gene mutation that distorts bone growth.
This Nebraska Mom and Her Two Sons Have One of the Rarest Diseases in the World: 'Pain Is Part of Our Every Day' (Exclusive) yahoo.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from yahoo.com Daily Mail and Mail on Sunday newspapers.
Meta/User Description A tireless search for her own diagnosis and her sons pushed her to create The Jansen s Foundation, an organization that brings awareness, research funds, and hope for a cure to this rare and debilitating skeletal condition.
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As Phoenix Children's continues to prioritize clinical excellence and translational research with the hope of advancing new treatments for devastating childhood illnesses, the health system has added another internationally renowned surgeon-scientist to its medical staff. Maegen Wallace, MD, MBA, a pediatric orthopedic surgeon and expert in osteogenesis imperfecta, or brittle bone disease, joined the Herbert J. Louis Center for Orthopedics and Sports Medicine at Phoenix Children's last month.