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Brave new mum in awe of her beautiful baby girl battling multiple heart problems

Brave new mum in awe of her beautiful baby girl battling multiple heart problems Claire Tremaine is sharing her and her daughter Ivy s journey to help raise awareness of CHD The video will auto-play soon8Cancel Play now When Claire Tremaine first found out she was pregnant, her biggest worry was what nursery furniture she would need for her baby. But at her 20-week scan she was hit with the heartbreaking news her baby had heart problems and suddenly she had bigger things to worry about . The 26-year-old, from Plymouth, was offered a termination when she was 26 weeks pregnant, but declined and vowed to fight every step of the way - now her baby girl Ivy has proved to have inherited the same courageous spirit as her inspiring mum.

Tanni Grey-Thompson health: Paralympian born with spina bifida - what is it?

In a UK first in 2019, doctors used keyhole surgery to successfully repair the spine of a baby with spina bifida while it was still inside the womb. Tanni revealed at the time her parents would “probably have terminated the pregnancy” If they had known about her disability. She said terminating a disabled baby is a “complicated issue”. Speaking to Gareth Lewis on BBC Radio Wales, the Cardiff-born sports star said: “When I was born there weren t the diagnostics for spina bifida. Tanni Grey-Thompson health: The star is one of the most successful disabled athletes in the UK (Image: GETTY) “My mum had a really open conversation with me even when I was quite young, and she said they probably would have terminated the pregnancy if they d known.

The UK Rare Diseases Framework

The UK Rare Diseases Framework Published 9 January 2021 © Crown copyright 2021 This publication is licensed under the terms of the Open Government Licence v3.0 except where otherwise stated. To view this licence, visit nationalarchives.gov.uk/doc/open-government-licence/version/3 or write to the Information Policy Team, The National Archives, Kew, London TW9 4DU, or email: psi@nationalarchives.gov.uk. Where we have identified any third party copyright information you will need to obtain permission from the copyright holders concerned. This publication is available at https://www.gov.uk/government/publications/uk-rare-diseases-framework/the-uk-rare-diseases-framework Ministerial foreword The UK Rare Diseases Framework aims to ensure that the lives of people living with rare diseases continue to improve. We will work across the 4 nations of the United Kingdom to ensure that rare disease patients receive the best possible care, building on the commitments in the UK S

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