Glance, hes a boy whos developed normally. But when he was about a year and a half old, as parents realize that something was wrong, their son fidgeted constantly and stumbled more often than other kids. His age. The 1st symptoms of his illness. Porras has an extremely rare genetic defect and effects about one and 100000 children. Actually every single person, normal van he was born. And he was just like those 200. 00 plus orthodontics picked up. Um, either shocked with the news and very upset actually. So the doctors just told us that there was no treatment for this company. The and no treatment met. Their child would soon end up in a wheelchair and would die at a young age. The doctors had diagnosed attacks here tell inject tasia or a t for short virus and island tried to find out more and found a needle in a haystack of research. And to us, another child with a tea was receiving a novel r n a therapy. Our son and the girl in the us have the same genetic mutation, so that the individ
Good afternoon, everyone. I am the director of the museum and staff director of the museum of Natural History. It is my pleasure to welcome you to the next pandemic. Hopefully its not the next pandemic right here. You might think that the Natural History museum is not the best placed at the meeting like this. This museum is the largest Natural Museum and has 145 million objects. I say that objects, whatever, but the reality is collecting the Natural World for the last frontiers in preserving preserving those objects in museums, and this is the place where we have what we know about planet earth, so the records have collect and over the years 300 years preserved at acceptable by research scientists. Last year over 400 species were described by scientists working the building. At the same time we welcome 6 million visitors. Most of those visitors are tourists which means the next years a different 6 million, the world plus largest collection, visit by the Worlds Largest is the audience,
Cree institute for Industrial Economics and trade in the create Aerospace Industries for cohosting. Im lisa, i have the honor of introducing are for speakers today. Before i would like to mention a word about safety. We have a very secure building and to not expect any emergency situations. If something does occur please exit the building using the staircases and emergency exits. Please walk toward the geographic building. Then there i will give you further instructions if necessary. I wonder do surfers two speakers. [inaudible] briefly introduces two. Prior to joining he served as director of the Economic Research division. Also an advisor for government organizations and private sector organizations. He had a notable career as an economist. Thank you. Good morning and welcome. Glad to have you here. Simply so many are here for the program. This is our 30th weve been doing this. Im pleased with this partnership. Were so right now than any time, im a little startled at how alarmist the
Conference. A morning and thank you for coming to the event. Its a pleasure to cohost the conference. Like to thank our partners, the cree institute for Industrial Economics and trade in the create Aerospace Industries for cohosting. Im lisa, i have the honor of introducing are for speakers today. Before i would like to mention a word about safety. We have a very secure building and to not expect any emergency situations. Ions. If something does occur please exit the building using the staircases and emergency exits. Please walk toward the geographic building. Then there i will give you further instructions if necessary. I wonder do surfers two speakers. [inaudible] briefly introduces two. Prior to joining he served as director of the Economic Research division. Also an advisor for government organizations and private sector organizations. He had a notable career as an economist. Thank you. Good morning and welcome. Glad to have you here. Simply so many are here for the program. This i
Its a pleasure to cohost the conference. Like to thank our partners, the cree institute for Industrial Economics and trade in the create Aerospace Industries for cohosting. Im lisa, i have the honor of introducing are for speakers today. Before i would like to mention a word about safety. We have a very secure building and to not expect any emergency situations. If something does occur please exit the building using the staircases and emergency exits. Please walk toward the geographic building. Then there i will give you further instructions if necessary. I wonder do surfers two speakers. [inaudible] briefly introduces two. Prior to joining he served as director of the Economic Research division. Also an advisor for government organizations and private sector organizations. He had a notable career as an economist. Thank you. Good morning and welcome. Glad to have you here. Simply so many are here for the program. This is our 30th weve been doing this. Im pleased with this partnership.