NEW DELHI, Mar 6: In order to commemorate World Rare Disease Day, the Organization for Rare Diseases India (ORDI) would organise the 8th edition of Racefor7 on March 12 in New Delhi. The annual event by ORDI would raise awareness about the rare disease community and advocate better policies and access to treatment for rare disease patients. Speaking at the event, Dr Neerja Gupta, Additional Professor, Division of Genetics, Department of Pediatrics, AIIMS, New Delhi said “Rare diseases now have […]
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Professor Fiifi Ofori-Acquah, President of the Ghana Sickle Cell Foundation, says the Foundation since its establishment in 1995 has identified and treated 9,000 children with sickle cell disease through screening of newborns. He said those children would have lost their lives if not identified and treated. Prof. Ofori-Acquah said this…