Share this article
Share this article
SILVER SPRING, Md., March 3, 2021 /PRNewswire/ In partnership with more than 70 advocacy groups, healthcare providers, and biotech companies, the Tuberous Sclerosis Alliance (TS Alliance), an internationally recognized nonprofit that raises awareness and funds to fight the rare genetic disease tuberous sclerosis complex (TSC), recently issued a letter to the National Governors Association that calls on states to immediately prioritize Americans with life-threatening rare diseases in their COVID-19 vaccine rollouts.
In late January, President Biden announced a strategy committed to vaccine distribution for high-risk individuals, specifically those with underlying conditions, including rare diseases. However, the 25-30 million individuals in the United States with rare diseases and their caregivers have yet to be prioritized in many states. The letter has already been submitted to several states and will be presented to every state in the
TS Alliance Advocates for Prioritization of Rare Disease Patients and Caregivers for COVID-19 Vaccines prnewswire.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from prnewswire.com Daily Mail and Mail on Sunday newspapers.
the interstate causing a few accidents and plenty of frayed nerves. we ll tell you what happened next. happy friday, everyone. that was for fonzi over there. our manager. last weekend before midterms. promises to be wild. all kinds of craziness and more signs the democrats are desperate including reports out of florida overnight that former president clinton tried to get the democratic senate candidate out of the race. kendrick meek, the democrat, was third in a three-way race behind marco rubio. the idea was meek to get out, endorse crist and join the democrats if he won much the goal was to make sure the democrats stayed in control of the senate. it all fell apart and we ll talk to kendrick meek, the democrat, in just a couple minutes. first look at president bush s candid book, new revelations about his actions on 9/11, his personal life including his faith and his struggles with alcohol. and charlie sheen heads back to work as more details continue to come out. new
look at this. someone took a wrong turn onto the interstate causing a few accidents and plenty of frayed nerves. we ll tell you what happened next. happy friday, everyone. that was for fonzi over there. our manager. last weekend before midterms. promises to be wild. all kinds of craziness and more signs the democrats are desperate including reports out of florida overnight that former president clinton tried to get the democratic senate candidate out of the race. kendrick meek, the democrat, was third in a three-way race behind marco rubio. the idea was meek to get out, endorse crist and join the democrats if he won much the goal was to make sure the democrats stayed in control of the senate. it all fell apart and we ll talk to kendrick meek, the democrat, in just a couple minutes. first look at president bush s candid book, new revelations about his actions on 9/11, his personal life including his faith and his struggles with alcohol. and charlie sheen heads back to wo