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Sen Schmitt says Biden failed to address key issues during divisive, bizarre SOTU address

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Rare Disease, Facial Angiofibroma Associated with Tuberous Sclerosis Complex (TSC), is Focus of New Disease Education Website Launched by Nobelpharma America

FACE FORWARD, a new website focused on disease awareness, has launched with educational content on facial angiofibroma, an aspect of tuberous sclerosis complex.

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Rare Leader: Tracy Dixon-Salazar, Executive Director, Lennox Gastaut Syndrome (LGS) Foundation

Rare Leader: Tracy Dixon-Salazar, Executive Director, Lennox Gastaut Syndrome (LGS) Foundation
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A Map to Navigate a Rare Disease - Global Genes

A Map to Navigate a Rare Disease - Global Genes
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TS Alliance Advocates for Prioritization of Rare Disease Patients and Caregivers for COVID-19 Vaccines

Share this article Share this article SILVER SPRING, Md., March 3, 2021 /PRNewswire/ In partnership with more than 70 advocacy groups, healthcare providers, and biotech companies, the Tuberous Sclerosis Alliance (TS Alliance), an internationally recognized nonprofit that raises awareness and funds to fight the rare genetic disease tuberous sclerosis complex (TSC), recently issued a letter to the National Governors Association that calls on states to immediately prioritize Americans with life-threatening rare diseases in their COVID-19 vaccine rollouts. In late January, President Biden announced a strategy committed to vaccine distribution for high-risk individuals, specifically those with underlying conditions, including rare diseases. However, the 25-30 million individuals in the United States with rare diseases and their caregivers have yet to be prioritized in many states. The letter has already been submitted to several states and will be presented to every state in the

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