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We have been battling for this application for a year now, and with this news it brings a sense of hope and joy that our community will finally be able to live long and healthy lives. Lee has been taking miracle drug Trikafta for more than a year. He s been funding it himself, at an extraordinary cost of more than $400,000 per year. But this entire time, he s been fighting to have the drug for all Kiwis who need it and says tonight he will be celebrating with a bottle of champagne. Pharmac says it is beginning to assess the medicine, starting today. ....
Trikafta about to be given for free to critically ill Kiwis with cystic fibrosis newshub.co.nz - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from newshub.co.nz Daily Mail and Mail on Sunday newspapers.
Monday, 3 May 2021, 1:48 pm Cystic Fibrosis NZ is calling on the New Zealand public to help “give a future” for Kiwis with cystic fibrosis (CF) by supporting its annual appeal which runs from 1-31 May 2021. Living with CF is tough, time-consuming, and an emotional rollercoaster. It doesn t get easier for those affected. Life-saving medications such as Trikafta are still not funded in New Zealand, severely impacting both quality and length of life. There is no cure, and only half of those with CF reach 31 years of age. The “give a future” annual appeal calls on the New Zealand public to help change ....
Tauranga boy pleads for Trikafta drug to ease cystic fibrosis 19 Feb, 2021 10:00 PM 7 minutes to read Harry Oxenham has cystic fibrosis and hopes a treatment drug will change his life. Photo / George Novak Harry Oxenham has cystic fibrosis and hopes a treatment drug will change his life. Photo / George Novak It s a little like the sound of a dishwasher or the washing machine. The sound is relentless - constantly filling the silence of thought as Harry s parents, Aly, Dan and I talk. Ironically, relentless is how Aly describes the half-hour treatment regime that sees Harry using three different mouthpieces, to achieve three different results for the sticky mucus on his lungs, otherwise known as cystic fibrosis. ....