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Monday, 3 May 2021, 1:48 pm Cystic Fibrosis NZ is calling on the New Zealand public to help “give a future” for Kiwis with cystic fibrosis (CF) by supporting its annual appeal which runs from 1-31 May 2021. Living with CF is tough, time-consuming, and an emotional rollercoaster. It doesn t get easier for those affected. Life-saving medications such as Trikafta are still not funded in New Zealand, severely impacting both quality and length of life. There is no cure, and only half of those with CF reach 31 years of age. The “give a future” annual appeal calls on the New Zealand public to help change ....
Thursday, 8 April 2021, 4:04 pm Shane Kidby (48 years) is attempting to walk Aotearoa’s entire coastline to raise funds and awareness for cystic fibrosis and mental health in honour of his late brother and terminally ill mother. Cystic fibrosis and mental health are close to New Plymouth resident, Shane Kidby’s heart. When he was only nine years old, Shane lost his little brother, Daniel, to cystic fibrosis. His mother is currently terminally ill with cancer and Shane, himself, had a hip replacement a few years ago as a result of Perthes disease as a child. Shane is all too familiar with mental health battles experienced as a ....
Thursday, 4 March 2021, 2:17 pm Auckland couple launch a new podcast dedicated to Cystic Fibrosis What the CF! A Cystic Fibrosis Podcast is dedicated to telling Cystic Fibrosis stories from Aotearoa. Ingrid Grenar and Ian Wright are parents of an 18 month-old CFer and seasoned media professionals with a background in radio, presenting, video production and multimedia journalism. They ve decided to produce a podcast to give back to and galvanize the amazing CF community they’ve now found themselves part of. “ We ll provide our own family s take on the impact of a chronic illness diagnosis. But, as well as being our own audio diary, we want to tell ....
Press Release – WTCF Ingrid Grenar and Ian Wright are parents of an 18 month-old CFer and seasoned media professionals with a background in radio, presenting, video production and multimedia journalism. They’ve decided to produce a podcast to give back to and galvanize the … Auckland couple launch a new podcast dedicated to Cystic Fibrosis What the CF! A Cystic Fibrosis Podcast is dedicated to telling Cystic Fibrosis stories from Aotearoa. Ingrid Grenar and Ian Wright are parents of an 18 month-old CFer and seasoned media professionals with a background in radio, presenting, video production and multimedia journalism. They’ve decided to produce a podcast to give back to and galvanize the amazing CF community they’ve now found themselves part of. ....