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Tauranga boy pleads for Trikafta drug to ease cystic fibrosis

Tauranga boy pleads for Trikafta drug to ease cystic fibrosis
19 Feb, 2021 10:00 PM
7 minutes to read
Harry Oxenham has cystic fibrosis and hopes a treatment drug will change his life. Photo / George Novak
Harry Oxenham has cystic fibrosis and hopes a treatment drug will change his life. Photo / George Novak
It s a little like the sound of a dishwasher or the
washing machine.
The sound is relentless - constantly filling the silence
of thought as Harry s parents, Aly, Dan and I talk.
Ironically, relentless is how Aly describes the half-hour treatment regime that sees Harry using three different mouthpieces, to achieve three different results for the sticky mucus on his lungs, otherwise known as cystic fibrosis. ....

New Zealand , New Zealanders , Jane Bollard , Harry Oxenham , Rotorua Leah Rumney , Lisa Williams , Leah Rumney , Rotorua Daily Post Weekend , Fibrosis New Zealand , Cystic Fibrosis New Zealand , Trikafta For Kiwis , Harry S , புதியது ஜீலாந்து , ஜேன் பொல்லார்ட் , லிசா வில்லியம்ஸ் , லியா ரம்னி , ஃபைப்ரோஸிஸ் புதியது ஜீலாந்து , சிஸ்டிக் ஃபைப்ரோஸிஸ் புதியது ஜீலாந்து , ஹாரி கள் ,

Rotorua 11-year-old begs for Trikafta to be free of cystic fibrosis

Rotorua 11-year-old begs for Trikafta to be free of cystic fibrosis
12 Feb, 2021 05:00 PM
6 minutes to read
Leah Rumney who wants Trikafta for Leah s cystic fibrosis
Leah Rumney s Christmas wish was to be free of cystic fibrosis.
But it s a wish which broke her mother s heart because she knew she couldn t make it happen for her 11-year-old.
Not without Trikafta -
a breakthrough treatment Cystic Fibrosis NZ says is widely heralded as having the potential to turn cystic fibrosis from a life-threatening condition to a manageable condition.
But it is not currently registered and funded in New Zealand.
And at more than $470,000 a year the drug is simply not attainable to many with cystic fibrosis, including the Rotorua girl. ....

New Zealand , New Zealand General , New Zealanders , Jane Bollard , Janelle Rumney , Leah Rumney Christmas , Lisa Williams , Leah Rumney , Cystic Fibrosis , Rotorua Daily , Fibrosis New Zealand , Cystic Fibrosis New Zealand , Trikafta For Kiwis , புதியது ஜீலாந்து , புதியது ஜீலாந்து ஜநரல் , ஜேன் பொல்லார்ட் , ஜனேல்லே ரம்னி , லியா ரம்னி கிறிஸ்துமஸ் , லிசா வில்லியம்ஸ் , லியா ரம்னி , சிஸ்டிக் ஃபைப்ரோஸிஸ் , ஃபைப்ரோஸிஸ் புதியது ஜீலாந்து , சிஸ்டிக் ஃபைப்ரோஸிஸ் புதியது ஜீலாந்து ,