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Study: Rare disease treatment being neglected

Study: Rare disease treatment being neglected
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Krung thep mahanakhonSok kunNadiah hanim abdul latifSouth east asiaAsean rare disease consortium ardMalaysia rare disorders societyPhilippines society for orphan disordersIndonesian rare disease foundationMetabolism unit at universiti malaya paediatrics departmentRare disorders societyThai rare disease foundationUniversiti malaya medical centreRare disorders society singaporeMetabolism unitUniversiti malayaTae sok kun

Better regulatory mechanism and patient registry; a must for rare disease management; experts at the IHW Council Rare Disease Summit

Better regulatory mechanism and patient registry; a must for rare disease management; experts at the IHW Council Rare Disease Summit
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New delhiPrasanna kumar shirolAnkita kumariMadhulika kabraGenetics subdivision of the department paediatricsIndia institute of medical sciencesOrganization for rare diseases indiaNational policy on rare diseasesRare disease summitIntegrated healthWellbeing councilGenetics subdivisionAll india instituteMedical sciencesKumar shirolAshoka fellow

Business News | Better Regulatory Mechanism and Patient Registry; a Must for Rare Disease Management; Experts at the IHW Council Rare Disease Summit

Get latest articles and stories on Business at LatestLY. New Delhi [India], July 1: The experts at the Rare Disease Summit emphasised the need for patient registry for accessible treatment opportunities for rare disease patients while deliberating on the various aspects of rare disease management in the country. The summit was organized by the health think tank, Integrated Health and Wellbeing Council in collaboration with AstraZeneca to create awareness on rare diseases and their effective management. Business News | Better Regulatory Mechanism and Patient Registry; a Must for Rare Disease Management; Experts at the IHW Council Rare Disease Summit.

New delhiMadhulika kabraAnkita kumariPrasanna kumar shirolIndia institute of medical sciencesGenetics subdivision of the department paediatricsOrganization for rare diseases indiaNational policy on rare diseasesRare disease summitIntegrated healthWellbeing councilGenetics subdivisionAll india instituteMedical sciencesDamage claimsKumar shirol

Better Regulatory Mechanism and Patient Registry a Must for Rare Disease Management Experts at the IHW Council Rare Disease Summit

The experts at the Rare Disease Summit emphasised the need for patient registry for accessible treatment opportunities for rare disease patients while deliberating on the various aspects of rare disease management in the country. The summit was organized by the health think tank Integrated Health and Wellbeing Council in collaboration with AstraZeneca to create awareness on rare diseases and their effective management.

Rare disease summitIntegrated healthWellbeing council

Poxel SA: Poxel Reports Financial Results for First Half 2021 and Provides a Corporate Update

Poxel SA: Poxel Reports Financial Results for First Half 2021 and Provides a Corporate Update
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