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Testing begins in Westray to detect originator of faulty cancer gene

Testing begins in Westray to detect originator of faulty cancer gene
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Huntington's Disease patients in Moray fund pioneering research in hunt for cure

Huntington's Disease campaigners in Moray have donated £2,000 to fund Aberdeen University research into finding a cure for the condition. ....

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Aberdeen first in UK to recruit for new Huntington's disease trial

Aberdeen first in UK to recruit for new Huntington’s disease trial
Updated: 03/04/2021, 9:27 am
© Shutterstock / Tashatuvango
Aberdeen has recruited the first UK patient for a new Huntington’s disease trial
Aberdeen University has recruited the first UK patient for a new trial investigating a drug for the treatment of Huntington’s disease.
Also known as HD, Huntington’s disease is an inherited condition that causes neurons in the brain to degenerate. The condition can get gradually worse over time there is currently no effective treatment to halt or slow its progression.
The PROOF-HD study, sponsored by Prilenia Therapeutics, will enrol up to 480 people with early-stage Huntington’s at approximately 60 sites across the US, Canada and Europe. ....

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Huntington's Disease: Sandy Patience refused to let lockdown stop him helping to find cure

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For all of his life Sandy Patience has watched family and loved ones taken from him slowly by Huntington’s Disease.
The genetic condition has no known cure and has a 50% chance of being passed from parents to children – but now the 58-year-old is helping to try and change that.
Sandy, who is originally from the Black Isle but now lives in Inverness, has spent his entire life watching loved ones slip away before being diagnosed himself in 2017.
Last year he lost his sister Helen to the condition, which causes parts of the brain to gradually stop working causing problems speaking, walking and swallowing. ....

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