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OVID Health's initiave rewarding companies' patient-centricity launches

An international initiative that recognizes, rewards, and benchmarks the reputations of pharma companies in patient engagement and centricity has opened. ....

United Kingdom , Jenny Ousbey , Tanya Collin , Collette Goldrick , Sharon Hall , Sarah Woolnough , Corporate Affairs Strategy , King Fund , Association Of The British Pharmaceutical Industry , Patient Partnership Index , Public Affairs , International Gaucher Alliance , Patient Partnership Initiative , Tanya Collin Histed , British Pharmaceutical Industry , Goldrick Executive Director Corporate Affairs , Victoria Hayes , Northern Cluster , Kyowa Kirin , United Kingdom General Manager , Patient Centricity , Atient Centricity , Patient Engagement , Patient Recruitment , Clinical Trials ,

Horizon Therapeutics plc Announces 2023 RAREis Global Advocate Grant Recipients

Horizon Therapeutics plc Announces 2023 RAREis Global Advocate Grant Recipients
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Nederlandse Leverpatienten Vereniging , Eimear Rigby , Associazione Italiana Sindrome , Distrofia Brasil , Matt Flesch , Rareis Instagram , Michelle Rivas , A Italia Famiglie , Beck Fahrner Syndrome Foundation , Rare Disease Ghana Initiative , Chordoma Foundation , Syndrome Foundation , International Gaucher Alliance , Erdheim Chester Disease Global Alliance , International Patient Organisation For Primary Immunodeficiencies , Cholestasis Network , Pa Foundation Inc , Jansen Syndrome Foundation , Hypertrophic Olivary Degeneration Association , Brazilian Association Of Prader Willi Syndrome , Healthcare Education Institute , Lennox Gastaut Syndrome Foundation , E We Foundation , Research Foundation , Indo Us Organization For Rare Diseases , Koolen Syndrome Foundation ,

Horizon Therapeutics plc Announces 2023 #RAREis Global Advocate Grant Recipients

Fifty patient advocacy organizations from around the world awarded a $5,000 grant to address unique challenges faced in rare disease communities

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Nederlandse Leverpatienten Vereniging , Matt Flesch , Distrofia Brasil , Associazione Italiana Sindrome , A Italia Famiglie , European Huntington Association , Northern Ireland Rare Disease Partnership , Glanzmann Research Foundation Inc , Philippine Society For Orphan Disorders Inc , Recurrent Respiratory Papillomatosis Foundation , Alliance For Pulmonary Hypertension , Bulgarian Society Of The Patients , Pediatric Epilepsy Surgery Alliance , Foundation For Sarcoidosis Research , Osteogenesis Imperfecta Foundation , Bones Inc , Rory Belle Foundation , Lennox Gastaut Syndrome Foundation , Healthcare Education Institute , Brazilian Association Of Prader Willi Syndrome , Indo Us Organization For Rare Diseases , Koolen Syndrome Foundation , Research Foundation , E We Foundation , Erdheim Chester Disease Global Alliance , International Patient Organisation For Primary Immunodeficiencies ,

THE INTERNATIONAL GAUCHER ALLIANCE AND CERNER ENVIZA ENROLL FIRST PATIENT IN GARDIAN REGISTRY

/PRNewswire/ The International Gaucher Alliance (IGA) and Cerner Corporation (NASDAQ: CERN) announce that the GARDIAN registry (Gaucher Registry for. ....

United States , Cerner Enviza , Elin Haf Davies , Michael Fronstin , Tanya Collin , Gaucher Registry For Development Innovation , International Gardian Limited , International Gaucher Alliance , Health Tech Nasdaq , Cerner Corporation , Gaucher Registry , Development Innovation , Neuronopathic Disease , Lysosomal Storage Disorder , Tanya Collin Histed , International Gaucher , Cerner Perspectives , Tech Nasdaq , Cerner Corp ,

THE INTERNATIONAL GAUCHER ALLIANCE AND CERNER ENVIZA ENROLL FIRST PATIENT IN GARDIAN REGISTRY

/PRNewswire/ The International Gaucher Alliance (IGA) and Cerner Corporation (NASDAQ: CERN) announce that the GARDIAN registry (Gaucher Registry for. ....

United States , Cerner Enviza , Elin Haf Davies , Michael Fronstin , Tanya Collin , Gaucher Registry For Development Innovation , International Gardian Limited , International Gaucher Alliance , Health Tech Nasdaq , Cerner Corporation , Gaucher Registry , Development Innovation , Neuronopathic Disease , Lysosomal Storage Disorder , Tanya Collin Histed , International Gaucher , Cerner Perspectives , Tech Nasdaq ,