staff reporter in a significant stride towards addressing rare diseases, aiims bhopal, under the leadership of professor (dr) ajai singh, executive director, has been recognised as a center of excellence (coe) for rare d
Parents and relatives caring for medically fragile children 21 years of age and younger will have to wait to apply for medical training and financial compensation provided under a new state law approved in the last legislative session.
India News: Parenting is even tougher for those whose children have rare genetic diseases. They face challenges such as navigating hospitals, finding affordable t
Mucolipidoses (ML) are a group of inborn metabolic disorders due to the accumulation of complex carbohydrates (glycosaminoglycans) and glycolipids in the lysosomes.
Varun Gandhi was referring to the National Policy for Rare Diseases aimed at helping families from prohibitively high expenses for treating rare diseases.