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Horizon Therapeutics plc Announces 2023 RAREis Global Advocate Grant Recipients

Horizon Therapeutics plc Announces 2023 RAREis Global Advocate Grant Recipients
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Nederlandse leverpatienten verenigingEimear rigbyAssociazione italiana sindromeDistrofia brasilMatt fleschRareis instagramMichelle rivasA italia famiglieBeck fahrner syndrome foundationRare disease ghana initiativeChordoma foundationSyndrome foundationInternational gaucher allianceErdheim chester disease global allianceInternational patient organisation for primary immunodeficienciesCholestasis network

Horizon Therapeutics plc Announces 2023 #RAREis Global Advocate Grant Recipients

Fifty patient advocacy organizations from around the world awarded a $5,000 grant to address unique challenges faced in rare disease communities .

Nederlandse leverpatienten verenigingMatt fleschDistrofia brasilAssociazione italiana sindromeA italia famiglieEuropean huntington associationNorthern ireland rare disease partnershipGlanzmann research foundation incPhilippine society for orphan disorders incRecurrent respiratory papillomatosis foundationAlliance for pulmonary hypertensionBulgarian society of the patientsPediatric epilepsy surgery allianceFoundation for sarcoidosis researchOsteogenesis imperfecta foundationBones inc

HSG and HD-CAB Collaborate to Provide Global Patient Advisory Board

The Huntington Study Group (HSG) together with its wholly owned subsidiary, HSG Clinical Research, Inc., a world leader in conducting clinical trials for.

Jersey cityNew jerseyUnited statesGlasgow cityUnited kingdomAnnexon biosciencesJody coreyChristopher rossPeter collinsAstri arnesenEuropean huntington associationClinical research incAnnexon biosciences incHuntington study groupInternational ad boardInternational congress

Rare Disease Day 2022: how can we improve research in rare diseases?

In a blog for Rare Disease Day 2022, Cheney Drew discusses the DOMINO-HD study, registered at the ISRCTN registry, which aims to provide new insights into lifestyle and genetic risk factors in Huntington’s disease.

United kingdomMonica busseEuropean huntington associationProgram for neurodegenerative diseaseMulti domain lifestyle targetsJoint programNeurodegenerative diseaseEuropean huntington

„Седмица за болестта на Хънтингтън в Бургас: Засегнатите имат нужда от съпричастност и подкрепа

„Седмица за болестта на Хънтингтън в Бургас: Засегнатите имат нужда от съпричастност и подкрепа
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