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MP seeks govt help for kids suffering from spinal muscular atrophy

MP seeks govt help for kids suffering from spinal muscular atrophy By IANS | Published on Wed, Mar 17 2021 12:42 IST | 4 Views spinal cord.. Image Source: IANS News New Delhi, March 17 : Congress MP Vivek Tankha during zero hour in the Rajya Sabha on Wednesday raised the issue of children suffering from spinal muscular atrophy. The Congress MP raised the matter and demanded the government to take up theissue with the drug manufacturing company so that the drug becomes cheaper. He also demanded that the medicine should be provided to all those children who are suffering from this genetic disease. The company Novartis manufactures the drug named Zolgensma for gene therapy to treat spinal muscular atrophy. Zolgensma is the most expensive medicine in the world and it costs 2.1 million US dollars, about Rs 15.24 crore in Indian currency. One injection is enough to correct the genetic defect.

New delhiVivek tankhaMihir kamatDevendra fadnavisCongress mp vivek tankhaRajya sabhaPrime ministerChief minister maharashtra devendraMumbai based priyankaTypei spinalபுதியது டெல்ஹிமிஹிர் காமத்ராஜ்யா சபாப்ரைம் அமைச்சர்தலைமை அமைச்சர் மகாராஷ்டிரா தேவேந்திராமும்பை அடிப்படையிலானது பிரியாங்க

Mumbai parents crowdfund Rs 16 Cr for 5-month-old baby s treatment, thank everyone

Last Updated: Mumbai Parents Crowdfund Rs 16 Cr For 5-month-old Baby s Treatment, Thank Everyone Parents of five-month-old baby, suffering from a rare medical condition, have been receiving support from across the globe via crowdfunding for the treatment In a piece of heartening news, the parents of a five-month-old baby, suffering from a rare medical condition, have been receiving support from across the globe via crowdfunding for the treatment of their daughter. Baby Teera Kamat, admitted in Mumbai suburban hospital, is suffering from spinal muscular atrophy in which a complete breakdown of nerve cells results in zero control over muscle movement. The rare medical disorder can be treated by a drug called Zolgensma approved by the US in 2019, which is not available in India though. The drug costs a whopping Rs 16 crore, including import duty and GST on medicine which amounts to Rs 6 crore.

United statesNarendra modiMihir kamatUddhav thackerayTeera kamatDevendra fadnavisBaby teera kamatPrime minister narendra modiFinance ministryஒன்றுபட்டது மாநிலங்களில்நரேந்திர மோடிமிஹிர் காமத்உத்தவ் தாக்கரேப்ரைம் அமைச்சர் நரேந்திர மோடிநிதி அமைச்சகம்

Mumbai: Parents Crowdfund Rs 16 Crore To Treat 5-Month-Old Daughter, Thank Donors

The central government also did its bit by waiving Rs 6 crore in taxes Mumbai: Tira Kamat, a five-month-old Mumbai infant, has been suffering since birth from spinal muscular atrophy a rare genetic condition that leads to the loss of muscles (skeletal muscles) needed for movement. Her middle-class parents couldn t afford a Rs 22-crore injection required for her medical treatment. However, when all hope appeared to be lost, thousands of people from across the world pitched in with donations - ranging from Rs 100 to Rs 5 lakh - to generate nearly Rs 16 crore for the infant s treatment, sending out a message that humanity transcends all borders.

Tira kamatPiyush jainMihir kamatDevendra fadnavisMonth old daughterThank donorsImpact guruதீர காமத்பியூஷ ஜெயின்மிஹிர் காமத்மாதம் பழையது மகள்நன்றி நன்கொடையாளர்கள்தாக்கம் குரு

Teera Kamat News: How PM Modi Helped 5 Year Old Teera In Fighting SMA By Waiving Off Duties And Taxes On Her Medicines: 5 महीने की तीरा कामत को पीएम मोदी ने टैक्‍स में दी 6 करोड़ रुपये की छूट, जानिए क्‍यों

Teera Kamat News: How PM Modi Helped 5 Year Old Teera In Fighting SMA By Waiving Off Duties And Taxes On Her Medicines: 5 महीने की तीरा कामत को पीएम मोदी ने टैक्‍स में दी 6 करोड़ रुपये की छूट, जानिए क्‍यों
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मोदी सरकार ने इस 5 महीने की बच्ची के लिए 6 50 करोड़ रुपए माफ किए

मोदी सरकार ने इस 5 महीने की बच्ची के लिए 6 50 करोड़ रुपए माफ किए
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