£1.79 million and is administered at the children s hospital in sheffield. without medical intervention, he would not live until his second birthday point of his parents have been scared he would not get the amazing chance of life. we would not get the amazing chance of life. ~ ., , would not get the amazing chance of life. 2 . , ,., ., life. we are ust so relieved and excited, life. we are just so relieved and excited, scared life. we are just so relieved and excited, scared and life. we are just so relieved and i excited, scared and apprehensive. nervous. absolutely completely petrified! it is a game changer, it is absolutely changed the face of sma. , ., , ., , , sma. this was when he was seven weeks old in sma. this was when he was seven weeks old in hospital sma. this was when he was seven weeks old in hospital having i sma. this was when he was seven weeks old in hospital having just l weeks old in hospital having just been resuscitated by his dad put it was later diagno
hospital in sheffield. sma itself is actually the most common genetic condition that causes infant deaths and severe disability worldwide. about 90% of children with sma type one would die by age two. so this treatment would drastically change the disease progression and outcome of each patient. you don t know what s around the corner. there s only five years worth of data. so, from what i ve seen from other children, theyjust get stronger. so the world really is his oyster. thank you, guys. edward has no idea he has just received the most expensive drug in the world, or how his life will now be transformed. but his parents feel he finally has a future. debbie tubby, bbc look east. sailing was one of the sports that team gb excelled at in this month s olympics, and today children from deprived communities in birmingham have been given the chance to have a go themselves.
a woman in her 90s has fallen and badly injured her arm. we re going to get comfy on here. she has dementia and there s no option but to take her to hospital, but this is the scene as the crew arrive, several ambulances are already queueing, each waiting for a bed or trolley to become available in a&e. 0n repeated occasions, spent an entire 12 hour shift. i have gone and collected a patient, come to hospital and this is where i ve stayed until an hour, two hours plus my finish time. it was early afternoon before the patient was eventually handed over. we ll be responding in the next four hours unless others are available sooner. is that timeframe acceptable? and trying to match 999 calls which are piling up with ambulances that are tied up is an immense challenge for staff here at the north wales control centre. heartbreaking at times.
got a cannula in which is a bit of plastic into his vein. got a cannula in which is a bit of plastic into his vein. and - got a cannula in which is a bit of plastic into his vein. and the i got a cannula in which is a bit of. plastic into his vein. and the drug goes plastic into his vein. and the drug goes through plastic into his vein. and the drug goes through that plastic into his vein. and the drug goes through that over plastic into his vein. and the drug goes through that over an - plastic into his vein. and the drug goes through that over an hour. l plastic into his vein. and the drugl goes through that over an hour. in june, goes through that over an hour. june, five months aso became goes through that over an hounm june, five months aso became the first baby to receive the revolutionary treatment on the nhs. now edward is one of a handful of babies being treated for the first time at the children s hospital in sheffield. . ~ time at the children s hospital in sheffi