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Freshman at Lexington high school rallies Bike 4 Life for rare disease

A Lexington high school student is hoping to make a major impact in her community by raising money for rare genetic diseases.

Hannah vittersRonald mcdonaldNed timmermanJack timmermanJamie timmermanElizabeth atkinsonHilton headBatten diseaseLexington high schoolBike 4 lifeRare genetic disorderRonald mcdonald house

Teen Cured of Rare Genetic Disorder: World s First Case

Discover how a groundbreaking medical team cured Kai, 13, of WILD syndrome, marking a milestone in rare disorder treatment.

United kingdomKai xueMona mossadYvonne slaterTeam dedication drStaffordshire childrenDecade long journeyAning chenMedical teamConsultant paediatric gastroenterologistRoyal stokeGenetic disorderRare genetic disorderIld syndromeEvere chylous ascitesYmphatic intervention

For Component Brewing owner, Zebra Hop beer fundraiser for rare diseases is personal

Jonathan Kowalske tapped more than 20 breweries to brew the IPA and raise money for the rare disease community.

United statesNew mexicoEagle parkDepartment of educationThree floyds zombie dustThree floyds zombieBud lightFancy genesNew englandBraille literacy enhancementRare disease dayTruebru homebrewZebra hopSpike brewingMilwaukee admiralsRare disease

Family of brain-dead child from Surat donates his liver to Mumbai boy

A 281-km interstate green corridor was set up to transport the liver from a private hospital in Surat to Nanavati Max Super Speciality Hospital in Mumbai.

Representational imageNanavati max super speciality hospitalGujarat toddler donated liverRare genetic disorderOrgan donationGreen corridorUrat speciality hospitalNdian express news

Community comes together to help 11-year-old boy with rare genetic disorder

A Pewaukee bar hosted a fundraiser Sunday afternoon to raise money for an Oconomowoc child with a rare genetic disease.

Emily pofahlDan brezgelDeborah brezgelCalvin brezgelWaterfront sports bar11 year old boyRezgel familyRare genetic disorder

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