Rare diseases are lifelong conditions. Approximately 95 per cent of them have no approved treatment. In cases where drugs are available, they are prohibitively exorbitant. Fakir, who earns less than Rs 10,000 per month, says his son's treatment costs Rs 30 lakh per annum.
Challenging simultaneous liver and kidney transplant (that lasted 16 hours) bestows a 37-year-old woman (suffering from a rare genetic disorder) with a new lease of life.