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Connecticut Establishes a Permanent Rare Disease Advisory Council

Connecticut Establishes a Permanent Rare Disease Advisory Council
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United statesLesley bennettSusan bysiewiczWilliam petitNed lamontAbbey meyersPeter saltonstallJonathan steinbergNational organization for rare disordersAssembly public health committeeRare disease advisory councilConnecticut rare action network volunteer ambassadorGovernor ned lamontHouse billGovernor lamontGovernor susan bysiewicz

Connecticut Establishes a Permanent Rare Disease Advisory Council

/PRNewswire/ Yesterday, Governor Ned Lamont signed House Bill 5500 (HB 5500) into law which includes provisions to establish a permanent Rare Disease.

United statesLesley bennettSusan bysiewiczWilliam petitNed lamontAbbey meyersPeter saltonstallJonathan steinbergNational organization for rare disordersAssembly public health committeeRare disease advisory councilConnecticut rare action network volunteer ambassadorGovernor ned lamontHouse billGovernor lamontGovernor susan bysiewicz

Connecticut Establishes a Permanent Rare Disease Advisory Council

/PRNewswire/ Yesterday, Governor Ned Lamont signed House Bill 5500 (HB 5500) into law which includes provisions to establish a permanent Rare Disease.

United statesLesley bennettSusan bysiewiczWilliam petitNed lamontAbbey meyersPeter saltonstallJonathan steinbergNational organization for rare disordersAssembly public health committeeRare disease advisory councilConnecticut rare action network volunteer ambassadorGovernor ned lamontHouse billGovernor lamontGovernor susan bysiewicz

Maine Elevates Rare Disease Voices, Establishes State Advisory Council

/PRNewswire/ Today, Maine s rare disease community celebrated the passage of Legislative Document 972 (LD 972), which officially establishes a Rare Disease.

United statesMargaret cravenHeidi rossNational organization for rare disordersRegulatory affairsHuman servicesRare disease advisory councilMaine legislatureLegislative documentRepresentative margaret cravenVice presidentNational organizationRare disordersIncluding maineNational organization for rare disorders nord

Georgia Becomes 22nd State to Establish a Rare Disease Advisory Council

New council will help educate medical professionals, government agencies, legislators, and the public about rare diseases, research and treatment

United statesBrian kempBeth nguyenMike cheokasHeidi rossNational organization for rare disordersRegulatory affairsRare disease advisory councilGeorgia rare action network volunteer state ambassadorGeorgia general assemblyGovernor kempNational organizationRare disordersGeorgia rare action network volunteer stateVice president

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