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Crain s New York Op-Ed: New York Needs To Prioritize Rare Disease - Healthcare

We live in an age of scientific miracles. We have an unprecedented ability to identify the causes of disease, and we have access to treatments, and even cures, we could not imagine only a few decades ago.

United statesNew yorkKathy hochulRare disease advisory councilBardet biedl syndromeRare disease caucusRare diseaseRare disease workgroupDisease dayRare disease advisoryCrains new york op ed needs to prioritize rare diseaseLife sciencesFood and drugs lawLife sciencesIotechnology amp nanotechnology

Colorado lawmakers revise effort to exempt rare disease drugs from state cost caps

An earlier bill reflected concerns patients may lose access to rare disease drugs if companies halt sales or investment in such medicines.

United statesRare disease advisory councilPrescription drug affordability board

Starting Dialogue On Rare Disease In South Carolina

Starting Dialogue On Rare Disease In South Carolina
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South carolinaUnited statesCortney gensemerMaysen mesarosNeena champaigneOlivia thompsonTranslational research instituteRare disease advisory councilCarolina rare disease advocacy councilCenters for diseaseSouth carolina rare disease advocacy councilPatrick flumeSouth carolina clinicalDaniel judgeDisease controlDisease advisory council

AdventHealth names chief clinical officer of West Florida Division

AdventHealth names chief clinical officer of West Florida Division
beckershospitalreview.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from beckershospitalreview.com Daily Mail and Mail on Sunday newspapers.

United statesAltamonte springsRajan raj wadhawanFlorida rare disease advisory councilAdventhealth west florida division onWest florida divisionRare disease advisory councilChief clinical officer

Florida lawmaker recognizes Rare Disease Day, urges others to challenge the norm

Florida lawmaker recognizes Rare Disease Day, urges others to challenge the norm
yahoo.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from yahoo.com Daily Mail and Mail on Sunday newspapers.

Florida state universityUnited statesPaul rennerAdam andersonEric lamackeyCollege of medicine interim dean alma littlesInstitute for pediatric rare diseasesFlorida state university office of researchRare disease advisory councilInstitute for pediatric rare diseases pradeep bhideFlorida department of healthRare disease dayFlorida capitol thursdayPediatric rare diseasesMedicine interim dean alma littlesExecutive director