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National Organization for Rare Disorders (NORD) Names Pamela K Gavin as CEO

/PRNewswire/ The National Organization for Rare Disorders (NORD) announced today that Pamela K. Gavin has been named CEO, effective immediately. She.

Abbey meyersPamela gavinPeterl saltonstallKay holcombePamelak gavinNational organization for rare disordersRare disease centers of excellenceNational institutes of healthCritical path instituteHarvard risk management foundationUniversity of pittsburg medical centerNortheastern universityDrug administrationSmith collegeWill serveNational organization

No 7 Notre Dame Women s Basketball Hosts No 20 Maryland In ACC/Big Ten Challenge

Off to a 6-0 start, the No. 7 Notre Dame women s basketball team faces its first ranked foe of the season when No. 20 Maryland visits on Thursday night

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The Benefits Of Orphan Drug Designation - Healthcare

According to the National Institutes of Health (NIH), there are over 7,000 diseases classified as rare, affecting an estimated 25-30 million Americans.

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Connecticut Establishes a Permanent Rare Disease Advisory Council

Connecticut Establishes a Permanent Rare Disease Advisory Council
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United statesLesley bennettSusan bysiewiczWilliam petitNed lamontAbbey meyersPeter saltonstallJonathan steinbergNational organization for rare disordersAssembly public health committeeRare disease advisory councilConnecticut rare action network volunteer ambassadorGovernor ned lamontHouse billGovernor lamontGovernor susan bysiewicz

Connecticut Establishes a Permanent Rare Disease Advisory Council

/PRNewswire/ Yesterday, Governor Ned Lamont signed House Bill 5500 (HB 5500) into law which includes provisions to establish a permanent Rare Disease.

United statesLesley bennettSusan bysiewiczWilliam petitNed lamontAbbey meyersPeter saltonstallJonathan steinbergNational organization for rare disordersAssembly public health committeeRare disease advisory councilConnecticut rare action network volunteer ambassadorGovernor ned lamontHouse billGovernor lamontGovernor susan bysiewicz