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Asia and the Indian Subcontinent: A Vision for Clinical Studies of Rare Diseases with Varied Prevalence Globally

Herndon, VA (PRWEB) August 01, 2023 There are globally inconsistent definitions of what constitutes a rare disease. According to the Orphan Drug Act

United statesHarsha rajasimhaGautam dongreGlobal public healthNational alliance of sickle cell organizationsIndousrare corporate allianceMinistry of healthGlobal rare disease communityInternational orphan drug trialsGeorge mason universityNature publishing groupUs congressIndia ministry of healthDrug administrationIndo us organization for rare diseases indousrareGenomic health

Advancing Rare Disease Research With Patient Registries

Advancing Rare Disease Research With Patient Registries
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United statesHarsha rajasimhaHarshak rajasimhaIndo us organizationOffice of patient affairsOffice of orphan products developmentGeorge mason universityHealth insurance portabilityJeeva informatics solutions incIndo us organization for rare diseases indousrareRare diseases registry radar programIndo us organization for rare diseasesRare diseasesOrphan drug actPatient affairsOrphan products development

Celebrating Rare Disease Day and 40 Years of the Orphan Drug Act Advocating for Rare Disease Patients and Their Families

Herndon, VA (PRWEB) February 07, 2023 Global life expectancy has more than doubled over the last two centuries, from less than 30 years to more than 72

United statesHarsha rajasimhaFrank sasinowskiHyman phelps mcnamaraUs congressIndo us organization for rare diseases indousrareInternational rare disease dayHuman servicesUs department of healthOrphan drug actExecutive chairmanRare diseasesDrug actDrug controller generalRare disease monthInternational rare disease

Families in India Face Ongoing Challenges When Coping With Rare Diseases

HERNDON, VA. (PRWEB) October 17, 2022 In India, an estimated 70 million people are living with a rare disease.(1) According to a recent report from RARE-X,

United statesNew delhiShubhangi patelHarsha rajasimhaInusha panigrahiVasanth raoObserver research foundationIndo us organization for rare diseases indousrareDepartment of advanced pediatrics centreShyama narang foundationCenters of excellence coesNational policy for rare diseasesRare diseasesAdvanced pediatrics centreCentral governmentUnion ministry

Political Squabbles Slow Drug Development for Rare Diseases

Herndon, VA (PRWEB) September 07, 2022 The U.S. Food and Drug Administration, the key regulatory agency governing clinical trials in the US, has been slow

Harsha rajasimhaUnion healthIndo us organization for rare diseases indousrareDrug administrationMinistry of healthPerspectives in clinical researchNational policy for rare diseasesExecutive chairmanRare diseasesFamily welfareNational policyIndian rupeeIndian governmentHealth ministerDiversity plansImprove enrollment