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Asia and the Indian Subcontinent: A Vision for Clinical Studies of Rare Diseases with Varied Prevalence Globally

Herndon, VA (PRWEB) August 01, 2023 There are globally inconsistent definitions of what constitutes a rare disease. According to the Orphan Drug Act

United statesHarsha rajasimhaGautam dongreGlobal public healthNational alliance of sickle cell organizationsIndousrare corporate allianceMinistry of healthGlobal rare disease communityInternational orphan drug trialsGeorge mason universityNature publishing groupUs congressIndia ministry of healthDrug administrationIndo us organization for rare diseases indousrareGenomic health

Global Registries Could Change the Lives of Hundreds of Millions of Rare Disease Patients Everywhere

Herndon, VA (PRWEB) March 20, 2023 Globally, between 263 and 446 million people are estimated to suffer from one of 11,000 named rare diseases about half

United statesHarsha rajasimhaNational institutes of healthIndousrare corporate allianceEffective health care programConcert pharmaceuticals incWorld economic forumUs national organization for rare disordersGeorge mason university campus in arlingtonAgency for healthcare researchNational institutesRare disordersCorporate allianceRare diseasesOrphan drugs industryGeorge mason university campus

Millions Suffer From Untreatable Rare Diseases While Medical Costs Skyrocket

HERNDON, VA (PRWEB) December 12, 2022 The economic burden of rare diseases has been vastly underestimated. A retrospective study of medical and insurance

United statesIndia generalSouth koreaHarsha rajasimhaCorporate allianceRare disease special interest groupIndousrare corporate allianceNational policy for rare diseasesValue in healthSizeable collective burden and offering solutionsA health economics value frameworkWorld economic forumNational policyRare diseasesDrug controller generalOrphanet journal

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