it is so important that people understand the condition, the symptoms, so that it doesn t get misdiagnosed in the future. we know from a survey we did with the facial palsy uk charity that over 50% of patients with ramsay hunt syndrome were misdiagnosed, so we really want to make sure that that is not happening in the future, so raising awareness of facial palsy, raising awareness of ramsay hunt syndrome is absolutely vital, and people need to get the support they need, access to charities like facial palsy uk, hospitals that specialise in facial palsy management, in order to get the appropriate health at the appropriate time.
which is the same virus that causes chickenpox and shingles, that attacks the facial nerves, causing the muscles of the face to become paralysed, amongst other symptoms in ramsay hunt syndrome, that s right. how many cases of ramsay hunt syndrome do you see or are reported in the uk? how common is it? well, there is thought to be 100,000 cases of facial palsy within the uk, and ramsay hunt syndrome is actually the second most common cause of facial palsy, after bell s palsy, but patients are often misdiagnosed, which is a real problem because if patients are misdiagnosed, they don t get the essential medication, anti viral medication and steroid medication that they need to have if they have ramsay hunt syndrome. so it is really important that actually patients are diagnosed appropriately by people who know what they are talking about, so as they can get the medication
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The baby boy with a rare condition which means his parents will never see him smile I just want an easy life for him
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