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Her journey is uncharted : 9-year-old Delaware girl with rare disease is beating the odds

Cassie DeChene was diagnosed with a rare genetic disease at 2 years old. Now, she and her family are inspiring others and pushing for change.

United statesJohn carneyBethany hallNewark charterElizabeth decheneJames decheneRare disease advisory councilNewark charter schoolChildren hospital of philadelphia rare diagnosis centerNational organization for rare disordersRare disease advisory councilsChristina early education centerUniversity of delaware institute for public administrationRare diagnosisCool carsBethany hall long

Her journey is uncharted : 9-year-old Delaware girl with rare disease is beating the odds

Her journey is uncharted : 9-year-old Delaware girl with rare disease is beating the odds
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United statesJohn carneyElizabeth decheneNewark charterJames decheneBethany hallChristina early education centerUniversity of delaware institute for public administrationChildren hospital of philadelphia rare diagnosis centerRare disease advisory councilsNational organization for rare disordersNewark charter schoolRare disease advisory councilRare diagnosisCool carsBethany hall long