Rotorua 11-year-old begs for Trikafta to be free of cystic fibrosis
12 Feb, 2021 05:00 PM
6 minutes to read
Leah Rumney who wants Trikafta for Leah's cystic fibrosis
Leah Rumney's Christmas wish was to be free of cystic fibrosis.
But it's a wish which broke her mother's heart because she knew she couldn't make it happen for her 11-year-old.
Not without Trikafta -
a breakthrough treatment Cystic Fibrosis NZ says is widely heralded as having the potential to turn cystic fibrosis from a life-threatening condition to a manageable condition.
But it is not currently registered and funded in New Zealand.
And at more than $470,000 a year the drug is simply not attainable to many with cystic fibrosis, including the Rotorua girl.