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Marley's family shares story during Rare Disease Week to raise awareness


Marley s family shares story during Rare Disease Week to raise awareness
and last updated 2021-02-23 06:05:30-05
GRAND RAPIDS, Mich. — Tuesday marks the start of Rare Disease Week, recognizing the nearly 30 million people in the U.S. who are affected by a rare disease.
Marley Berthoud of West Michigan was diagnosed with Bachmann Bupp syndrome. She was the very first human to be given that diagnosis, and since then there are now a few more people worldwide who have been given that diagnosis.​
Her mother Kelly had a normal pregnancy, but when Marley was born there were a lot of neurologic deficits that led doctors to take an MRI at her birth. That’s when they found a massive brain hemorrhage. After a year and a half, the family had been to multiple doctor appointments trying to find answers when they finally sought out a genetics consult. ....

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Parents of twins giving back to NICU team at Helen DeVos Children's Hospital with Pillow Case Drive


Parents of twins giving back to NICU team at Helen DeVos Children s Hospital with Pillow Case Drive
and last updated 2021-02-23 16:55:24-05
GRAND RAPIDS, Mich. — The Grand Rapids family who just brought their twins home from the NICU is giving back to the team at Helen DeVos Children’s Hospital.
The Myers family is putting together a ‘colorful pillow case drive’ to flood the nurses with linens to use inside all of their incubators. Despite going through their own struggles, they tell FOX 17 that they owe everything to those nurses and doctors.
“The staff at Helen DeVos has been phenomenal,” Tammy Myers said. ....

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One Good Thing: From the lacrosse field to the transplant list


A West Michigan wants to use his survival story to help others.
Author: Nick LaFave
Updated: 7:23 PM EST February 12, 2021
PORTAGE, Mich. Time for One Good Thing someone or something that makes West Michigan a good place to live.
Kids are usually only aware of the basics. That next homework assignment. The next game. What s for lunch. But a local teenager became aware of something much more serious. And now he wants to make other people aware of it, too.
Behind you!
Nice pass, nice shot.
In the back of my mind, I knew something was definitely wrong.
The then 14 year old because aware of something entirely new. ....

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Live Updates: House Puts $1.9 Trillion Stimulus on Fast Track, With No G.O.P. Votes


House Puts $1.9 Trillion Stimulus on Fast Track, With No G.O.P. Votes
Last Updated
Feb. 22, 2021, 9:09 a.m. ETFeb. 22, 2021, 9:09 a.m. ET
“I see enormous pain in this country,” said President Biden, who is pushing forward with his plan over Republican objections. Democrats advanced with plans to begin drafting the aid package next week and speed it through the House by the end of the month.
Here’s what you need to know:
-0:00
‘We’re Still in the Teeth of This Pandemic,’ Biden Says
President Biden called on Congress to act quickly on his proposed $1.9 trillion coronavirus relief package on Friday, in a speech following a weak jobs report. ....

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