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Prosser/Bevan/O'rorke - Pyramid Club, Wellington

Prosser/Bevan/O'rorke - Pyramid Club, Wellington
undertheradar.co.nz - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from undertheradar.co.nz Daily Mail and Mail on Sunday newspapers.

Chris Prosser , Simon Ororke , Julie Bevan , Prosser Bevan Ororke , Gig Information , Simono Rorke , Ample Sound Upright Bass , கிறிஸ் ப்ராஸர் , ஜூலி பெவன் , கிக் தகவல் ,

Tragic disease robbing kids of memories, skills


Health
by Danielle O’Neal
Premium Content
 
When Noah Bevan passed away at 15 years old, the teenager had regressed to a developmental stage of about a one-year-old.
The beloved son and brother from Warner, in the Moreton Bay region, had Sanfilippo Syndrome, a rare form of childhood dementia that causes progressive brain damage.
There is currently no cure or approved treatment and the life expectancy for children with the degenerative condition is 12 to 20 years.
 
Julie and Craig Bevan with children sabel, 11, Madilyn 5, Ella, 15, Jack 13, and Max, 9, who is holding a photo of Noah. Picture: Peter Wallis
 
Experts believe there are less than 100 cases in Australia. ....

New South Wales , Moreton Bay , Catherine Mccoombes , Peter Wallis , Jillian Ogrady , Julie Bevan , Craig Bevan , Oliver Mccoombes , Jamie Hanson , Anna Ogrady , Noah Bevan , Sanfilippo Syndrome , Jilliano Grady , புதியது தெற்கு வேல்ஸ் , மோர்டன் வளைகுடா , பீட்டர் வாலிஸ் , ஜூலி பெவன் , கிரேக் பெவன் , ஜேமி ஹான்சன் , அண்ணா ஒக்ரடி , சான்ஃபிலிப்போ நோய்க்குறி ,