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When Noah Bevan passed away at 15 years old, the teenager had regressed to a developmental stage of about a one-year-old. The beloved son and brother from Warner, in the Moreton Bay region, had Sanfilippo Syndrome, a rare form of childhood dementia that causes progressive brain damage. There is currently no cure or approved treatment and the life expectancy for children with the degenerative condition is 12 to 20 years.
Julie and Craig Bevan with children sabel, 11, Madilyn 5, Ella, 15, Jack 13, and Max, 9, who is holding a photo of Noah. Picture: Peter Wallis
Experts believe there are less than 100 cases in Australia. ....
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