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This Dubai startup aids charity through their new app khaleejtimes.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from khaleejtimes.com Daily Mail and Mail on Sunday newspapers.
French firm awaits FDA nod for drug to treat muscle woes gulftoday.ae - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from gulftoday.ae Daily Mail and Mail on Sunday newspapers.
UAE: Sheikh Mohammed s Dh8m help saves Iraqi baby s life One-year-old Laveen receives the world s most expensive therapy in Dubai “It is a day that made us truly speechless, we cannot say or explain how we feel now, but it was not a dose of treatment it was hope for all of us,” Iraqi national Ibrahim Al Jabar, the father of Baby Laveen, told Khaleej Times. Laveen suffers from a rare and fatal genetic disease called spinal muscular atrophy (SMA). In February, Ibrahim and his wife Massar Mundhar posted an emotional video, pleading for help as they learnt that the one-time injection that would save their baby’s life was the ‘world’s most expensive therapy’. The drug, called Zolgensma (AVXS-101), cost Dh8 million. ....
Sharjah Charity International needs Dhs8 million to save Syrian girl 04 Mar 2021 The girl, Sabah, is suffering from the first type of spinal muscular atrophy disease, according to the medical report. The Sharjah Charity International (SCI) has joined a race against time to collect Dhs8 million to save Sabah, a Syrian girl, and provide for her medical treatment. The girl is suffering from the first type of spinal muscular atrophy disease, according to the medical report, which confirmed that the health condition of the girl who has not yet completed her second year, is very serious and there is an urgent need for her to receive proper medical treatment. ....