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Parents seek financial assistance for only child in need of urgent bone marrow transplant


A family in Anuradhapura is seeking urgent financial assistance for a bone marrow transplant to save the life of their only child, who requires lifelong, regular blood transfusions to counter the declining levels of haemoglobin.
Residing in Meegassa Gama, Shashika Umayanga, 13, has been undergoing blood transfusions every month since he was six months old. Although the monthly blood transfusions at the Kurunagala hospital are free of charge, related expenses for the procedure amount to about Rs 20,000.
“My son has to undergo a bone marrow transplant before he is 14 (next year), according to doctors. My husband makes name boards for shops, and I am a homemaker. We don’t have a regular income, and, therefore, it is impossible for us to raise funds for this surgery which needs to be done at a private hospital as it is not available at government hospitals,” the mother of the child, Sagarika Udayangani said. ....

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First in Asia, Aster CMI Doctors Rescue Teen Suffering from Rarest of the Rare Genetic Disease


First in Asia, Aster CMI Doctors Rescue Teen Suffering from Rarest of the Rare Genetic Disease
Business Wire India
Till now, less than 10 such cases have been successfully transplanted in the world
The hospital highlights the need to increase awareness on Immune Deficiency
Aster CMI’s Pediatric Immunology Department recognized as Foundation for Primary Immunodeficiency Diseases (FPID) center of excellence
Ciara (name changed), a 13-year-old-girl from Mauritius, suffering from rarest of the rare Complement Deficiency genetic disease, C1q deficiency since the age of 2, became the first teen in Asia suffering from this complex condition to receive a bone marrow transplant. Thanks to the team of efficient doctors at Aster CMI Hospital, Bangalore for granting her a new lease of life. Ciara was suffering from repeated skin rashes and kidney ailments for over a decade and also developed difficulty in walking and stiffening of lower limbs. Until the transplant, Ciara ....

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