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'I'm just a mom trying to save my son's life' | Austin mother holds auction to raise money for son's rare disease

The auction is selling goods, services, experiences, trips and other things, all in an effort to help fund a faster way to cure Sanfilippo Syndrome. ....

United States , Simon Croke , Aliana Gorniak , Alina Gorniak , Cure Sanfilippo Foundation , Eric Pointer , Orange Theory Fitness , North Lamar ,

Austin family hopes son's love for basketball will help save his life

Simon Croke is a 'pro' at basketball, and his family hopes his skills will help bring awareness to the fatal disease he is battling. ....

United States , Alina Gorniak , Simon Croke , Sanfilippo Syndrome , Travis County ,

'It's like Alzheimer's for children': 5-year-old in Austin has Sanfilippo Syndrome

It is a rare and fatal disease that is the result of a missing enzyme deficiency that causes toxic storage to build up in the brain. It is like Alzheimer and Dementia, but in children. ....

United States , Glenn Oneill , Jeremy Croke , Alina Gorniak , Simon Croke , Cure Sanfilippo Foundation , Sanfilippo Syndrome , Little Steph , Cure Sanfilippo Syndrome , Glenno Neill , Cure Sanfilippo , Travis County ,