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Palm Coast girl has rare fatal disease, family raising money for therapy

You may have never heard of Sanfilippo Syndrome, but it's a devastating diagnosis.

Palm Coast girl has rare fatal disease, family raising money for therapy

You may have never heard of Sanfilippo Syndrome, but it's a devastating diagnosis.

North Carolina girl with 'childhood dementia' becomes social media star

North Carolina girl with 'childhood dementia' becomes Instagram star

Sadie has Sanfilippo syndrome, which is a rare degenerative genetic disease that affects 1 in 70,000 births.

Inspiring North Carolina girl, 8, has terminal childhood DEMENTIA which lowers life expectancy to just 15, with youngster no longer able to speak or move - but still hopes to bring joy to others

Sadie Haywood was diagnosed with Sanfilippo Syndrome at just three months old which left her with inability to walk or talk and a limited life expectancy