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Government plans to offer support for treatment of rare diseases

"Accordingly, as these patients have already commenced treatment, Sarepta Therapeutics has committed, as per the communication received by the NDRC (National Rare Diseases Committee), to continue treating these patients with Duchenne muscular dystrophy for the next three months, and to supply the medication free of cost during this period," it said. The court directed doctor Madhulika Kabra from the All India Institute of Medical Science to place the order for the medicine with the company within one week and expedite the procurement for these 14 patients. ....

Business News , Breaking News Events , Latest News Updates , Economic Times , Economic Times News App , Daily Market Updates , Live Business , Rare Diseases , Drug Prices , High Priced Drugs , Government Support , Patients Suffering , Treatment Support Mechanism , Sarepta Therapeutics , Delhi High Court ,

Govt set to file progress report on talks with makers of rare disease drugs

Activists have demanded that tax exemption be given for such drugs that are approved by Indias drug regulator and are available in the country. During the last hearing, the government counsel informed the court it has flagged the issue over customs duty and GST to the finance ministry and “is hopeful of informing the court about the outcome of the said issue on the next date”. ....

Delhi High Court , National Rare Diseases Committee , Rare Disease Drugs ,

Roche: Elevidys Trial In DMD Fails To Meet Primary Endpoint, But Shows Positive Efficacy Outcomes

Swiss drug major Roche Holding AG (RHHBY) announced Tuesday that EMBARK trial of Elevidys (delandistrogene moxeparvovec) in Duchenne muscular dystrophy or DMD failed to reach primary endpoint, but shows positive efficacy outcomes on all timed functional key endpoints. ....

Roche Holding , European Medicines Agency , More Such Health News , North Star Ambulatory Assessment , Duchenne Muscular Dystrophy , Oche Elevidys ,