The Delhi High Court has directed the All India Institute of Medical Sciences (AIIMS) to commence the process of procurement of medicines for children with rare diseases, for whom evaluations have.
Activists have demanded that tax exemption be given for such drugs that are approved by Indias drug regulator and are available in the country. During the last hearing, the government counsel informed the court it has flagged the issue over customs duty and GST to the finance ministry and “is hopeful of informing the court about the outcome of the said issue on the next date”.
The court had in May set up a five-member National Rare Diseases Committee (NRDC) to implement the Centre s rare diseases policy to ensure that its benefits reach patients. The panel held discussions with companies involved in research, manufacture and sale of therapies of rare diseases, including Sanofi, Sarepta and Roche, on July 17, the government informed the court earlier this month.
Citations 2023 LiveLaw (Del) 619 to 2023 LiveLaw (Del) 640NOMINAL INDEXICICI BANK LIMITED v. THE DEPUTY GENERAL MANAGER & ORS. 2023 LiveLaw (Del) 619PAYPAL PAYMENTS PRIVATE LIMITED v. FINANCIAL.
The Delhi High Court has directed the National Rare Diseases Committee, constituted by it, to hold deliberations with companies manufacturing and marketing medicines for Spinal Muscular Atrophy, a.