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Top News In Rare Disorders Society Singapore Today - Breaking & Trending Today

Study: Rare disease treatment being neglected

Study: Rare disease treatment being neglected
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Krung Thep Mahanakhon , Sok Kun , Nadiah Hanim Abdul Latif , South East Asia , Asean Rare Disease Consortium Ard , Malaysia Rare Disorders Society , Philippines Society For Orphan Disorders , Indonesian Rare Disease Foundation , Metabolism Unit At Universiti Malaya Paediatrics Department , Rare Disorders Society , Thai Rare Disease Foundation , Universiti Malaya Medical Centre , Rare Disorders Society Singapore , Metabolism Unit , Universiti Malaya , Tae Sok Kun , Pharmaceutical Sciences , Universiti Sains Malaysia , South East Asia Rare Disease Summit , Rare Disease Summit , Philippines Society , Orphan Disorders , Asean Rare Disease Consortium , Nadiah Hanim Abdul ,

More can be done to shorten diagnosis process for patients with rare diseases, say panellists at forum

It typically takes around seven years to diagnose a rare disease. Read more at straitstimes.com. ....

United States , United Kingdom , Nura Fiqah , Muhammad Nasri , Sheryl Lee , Rare Disorders Society Singapore , Carry Hope Forum , Barrie Wells , Tan Ee Shien , Rare Disorders Society , World Rare Disease Day , Straits Times , Singapore Sports Hub , Singapore Airshow , Paediatric Brain , Solid Tumours Awareness Day , Soh Shui Yen ,

They thought their son had 'stomach flu' but he nearly died of sepsis from a rare genetic condition

SINGAPORE (The Straits Times/Asia News Network): When Ashton Leow had diarrhoea, vomiting and fever on a Thursday in October 2021, a doctor gave the toddler some medicine for stomach flu. ....

Western Australia , Singapore General , Ashton Leow , Bianca Chan , Richard Leow , Kenneth Mah , Claire Teo , Daniel Teo , Straits Times Asia News Network , Rare Disorders Society Singapore , Asia News Network , X Linked Agammaglobulinemia , Rare Disease Day , Rare Disorders Society ,

'Stomach flu' that landed boy in ICU found to be rare disease

Singapore News - When Ashton Leow had diarrhoea, vomiting and fever on a Thursday in October 2021, a doctor gave the toddler some medicine for stomach flu. By Sunday morning, however, the usually lively and energetic boy, then aged two years and four months, just wanted to lie on the. Read more at www.tnp.sg ....

Western Australia , Singapore General , Ashton Leow , Bianca Chan , Richard Leow , Kenneth Mah , Claire Teo , Daniel Teo , Rare Disorders Society Singapore , X Linked Agammaglobulinemia , Rare Disease Day , Rare Disorders Society , Hildren And Youth , Kk Women 039s And Children Hospital ,

'Charity begins from home': Couple to spend Valentine's Day volunteering instead of dating - Mothership.SG - News from Singapore, Asia and around the world

There was once when 28-year old Reshveen Rajendran, and his wife, 27-year old Weeny Goh, were volunteering at the Rare Disorders Society (Singapore) (RDSS).
They had brought a friend’s child, Abby, to meet Chloe, a girl with Pompe disease which is a rare genetic disorder.
Photo courtesy of Reshveen Rajendran
What they didn’t realise was that Abby had a friend who was also called Chloe and coincidentally had passed on from a similar disease a year earlier.
For Abby, being able to befriend and open up to Chloe was a cathartic release; she had been feeling depressed after her friend’s passing, but opening up to Chloe gave her a great sense of relief. ....

Tan Tock Seng Hospital , Singapore General , Reshveen Rajendran , Rare Disorders Society Singapore , Weeny Goh , Rare Disorders Society , Chinese New Year , பழுப்பு டோக் செங் மருத்துவமனை , சிங்கப்பூர் ஜநரல் , ரேர் கோளாறுகள் சமூகம் சிங்கப்பூர் , வீனி கோ , ரேர் கோளாறுகள் சமூகம் , சீன புதியது ஆண்டு ,