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Gov. Holcomb makes appointments to various boards and commissions

INDIANAPOLIS Governor Eric J. Holcomb today announced several appointments to various state boards and commissions. Behavioral Health Commission The governor made five appointments to the new commission, who will serve until June 30, 2025: Zoe Frantz (West Lafayette), president and CEO of the . ....

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Colorado must ensure patients with rare diseases can access lifesaving medications

Colorado officials are using bad math and making risky assumptions that could put my access to my lifesaving treatment at risk. ....

United States , Jared Polis , Rare Disease Advisory Council , Prescription Drug Affordability Review Board , Rare Disease Caucus , Orange Theory ,

Colorado must ensure patients with rare diseases can access lifesaving medications

Colorado must ensure patients with rare diseases can access lifesaving medications
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United States , Jared Polis , Rare Disease Advisory Council , Prescription Drug Affordability Review Board , Rare Disease Caucus ,

Lt. Gov. Hall-Long Celebrates the Signing of Legislation to Create Delaware's First Rare Disease Advisory Council

Lt. Gov. Hall-Long Celebrates the Signing of Legislation to Create Delaware's First Rare Disease Advisory Council
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'Her journey is uncharted': 9-year-old Delaware girl with rare disease is beating the odds

Cassie DeChene was diagnosed with a rare genetic disease at 2 years old. Now, she and her family are inspiring others and pushing for change. ....

United States , John Carney , Bethany Hall , Newark Charter , Elizabeth Dechene , James Dechene , Rare Disease Advisory Council , Newark Charter School , Children Hospital Of Philadelphia Rare Diagnosis Center , National Organization For Rare Disorders , Rare Disease Advisory Councils , Christina Early Education Center , University Of Delaware Institute For Public Administration , Rare Diagnosis , Cool Cars , Bethany Hall Long , Legislative Hall , National Organization , Rare Disorders , Rare Disease Advisory , Sue Davis ,