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Crain's New York Op-Ed: New York Needs To Prioritize Rare Disease - Healthcare

We live in an age of scientific miracles. We have an unprecedented ability to identify the causes of disease, and we have access to treatments, and even cures, we could not imagine only a few decades ago. ....

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Colorado lawmakers revise effort to exempt rare disease drugs from state cost caps

An earlier bill reflected concerns patients may lose access to rare disease drugs if companies halt sales or investment in such medicines. ....

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Starting Dialogue On Rare Disease In South Carolina

Starting Dialogue On Rare Disease In South Carolina
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AdventHealth names chief clinical officer of West Florida Division

AdventHealth names chief clinical officer of West Florida Division
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Florida lawmaker recognizes Rare Disease Day, urges others to 'challenge the norm'

Florida lawmaker recognizes Rare Disease Day, urges others to 'challenge the norm'
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