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She. The subcommittee will come to order and dmi recognize self for five minutes of o statements. Thank you to our witnesses for sitting here today. The legislation before us will step helping to support rare disease. She a rare disease that affects less than 200,000 patients in the united states. According to the National Institute of hea there are over 10000s as many as 30 million amens despite 10 of the u. S. Population with a rare disease 95 o diseases most patients can evenosed which can be along journey only discover these options. Airbase is challenging especially when it comes to measuring the safety and efficacy of drugs for patient populations he investment and rare diseaseky and unpredictable. Better supportpproval. Research Rare Diseases and the which they seek appr ensure medicare and medicaid will cover this. Priority after program a decade ago bolster existing the orphan drug act. The doctor reduces financial risk for invaders to obtain resources needed to conduct Rare D

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