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Patients who visited neurofibromatosis specialists received better guided care

Patients who visited neurofibromatosis specialists received better guided care
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United statesShenaz baghaVanessal merkerByrobert herpenHarvard medical schoolAmerican neurological associationNeurofibromatosis networkChildren tumor foundation neurofibromatosis registryDepartment of defenseRobert herpenTumor foundation neurofibromatosis registry

Sex Education season 4 cast: New stars join familiar faces enrolling at Cavendish College

Sex Education season 4 cast: New stars join familiar faces enrolling at Cavendish College
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Obituary: Celia Dianne Geater of North Little Rock, Arkansas, formerly of Stuttgart

Obituary: Celia Dianne Geater of North Little Rock, Arkansas, formerly of Stuttgart
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Don whiteClotene richenback sandersBaptist healthStuttgart high schoolJohn lutheran churchNeurofibromatosis networkCelia dianne geaterNorth little rockClotene richenbackJere geaterMichael geaterLone tree cemeteryPastor donLutheran church

South Philly s night sky turned purple to honor girl who died from rare case of NF1

The night sky in South Philadelphia had an otherworldly purple and pink color on Thursday, May 12. It was produced by lights from Lincoln Financial Field, one of several buildings and landmarks raising awareness for the Magical Mila Foundation. Mila Gray Roomberg died when she was 17 months due to a rare case of Neurofibromatosis Type 1 that caused her to have high blood pressure. Her parents' foundation now works with the Children's Hospital of Philadelphia to improve the frequency of blood pressure screenings among pediatric patients.

United statesFranklin institutePhiladelphia international airportJessica roombergDave kinchenAlex steffler steffleralexBrian heffronKevin meyersJohn clark jclarkMila gray roombergMike jerrickDerrick pittsMelon bank centerLinc leaving wells fargo centerChildren tumor foundationNeurofibromatosis network

Inspire unveils critical rare disease patient insights at NORD 2021

/PRNewswire/ Inspire, the vital health community for millions of patients and caregivers, will present insights and findings from patient journeys and.

Shani weberKim bischoffMary mcgowanBrian loewRichard tsaiSarcoidosis support communityCommunity education directorNeurofibromatosis network nfPatient community building in rare diseasesNf networkNeurofibromatosis networkEhlers danlos societyFoundation for sarcoidosis researchPatient community buildingRare diseasesOrphan products breakthrough summit