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Family raises money to find cure for rare genetic disorder

COLUMBUS, Ohio (WCMH) — A Columbus family is increasing awareness and raising money, hoping to help find a cure for a rare genetic disorder. Lola is like a lot of three year olds. She loves dancing, playing with her toys, and books. Her parents, Sara Kear and Jake Kaufman, call her Lo. They want her […] ....

United States , Mousumi Bose , Sara Kear , Jake Kaufman , Global Foundation , Spectrum Disorder , Global Foundation For Peroxisomal Disorders ,

On Rare Disease Day, check in on special needs families | Opinion


On Rare Disease Day, check in on special needs families | Opinion
Updated Feb 27, 2021;
Posted Feb 27, 2021
Mousumi Bose, an assistant professor at Montclair State University whose son died from a rare disease, says individuals should reach out Sunday to families in their life who have children with a rare disease. Your kindness, especially on Rare Disease Day, will be greatly appreciated.Photo by Mike Peters/Montclair S
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By Mousumi Bose
For more than 30 million people in the United States half of which are children under the age of 5 the pandemic has merely been a continuation of their everyday lives. ....

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