has given her a prediction of the democrat, whoever the democrat is, winning a solid electoral victory in the electoral college in the next election. and we begin tonight where we left off last night, with the clock ticking on the death sentence, the trump administration has, we hope unwittingly, imposed on maria isabel pueso this is the most important story we discussed last night and it is the most important story we will discuss tonight ar life hangs in the balance because of an immigration policy change made by the trump administration which has decided to refuse to grant any extensions of permission to stay in the united states for medical treatment. that decision has been met by understandable outrage and moral condemnation since the story first broke. that radio station, wbur in boston, and then in the boston globe, and then yesterday in the new york times. and that moral condemnation is
one of the inventers of this therapy when it was first brought to the human for mps-1. he helped move this forward for mps-6, which was the second disease that was had therapy developed in this group. it was a tremendous breakthrough to be able to give the patients back the missing enzyme. it was a breakthrough of new science, genetics, all of the ability to do gene therapy within cells and make this protein that we can infuse each week. and the future is open. i mean, that s the amazing thing is that isabel is healthy and bright and vigorous and we re within a few years of being able to do gene therapy. trials are ongoing in italy for
take this opportunity to live and contribute away from her. dr. paul harmatz, thank you very much for taking the time to join us tonight, we really appreciate it. thank you, lawrence. and we turn now to the politics of governing. the politics of persuasion. and what it might take to convince the trump administration to save isabel s life. joining us now is maria estevete, former chief of staff to president clinton and lecturer at university of california berkeley school of law. thank you for joining us tonight. you ve worked in a presidential administration. you know the way the thinking works. you know the way persuasion works. what would you suggest as an approach to try to persuade the trump administration to pull back on what is a death sentence? i think the first thing to
and the responses that we re getting on the internet, by phone calls, by people parents of patients with rare diseases, similar diseases that i take care of that are asking how they can help and people calling who we don t know that are just giving suggestions and leaving messages. i think it s really beginning to move people that this is a crisis. and it s a crisis not just for isabel but for all of these very rare disease patients that are being asked to leave the country. i also i m not a hero. i m a pediatrician. i ve followed some great scientists with these studies and really want to give them credit. it was the perfect time to bring a unique therapy. we can therapy amal kakis was
disease that isabel struggles with. i certainly have never heard of it. and the disease that isabel has helped find medical breakthroughs for treatment. they could not have known that they were sentencing isabel personally to death with that letter. but after this week s news coverage of the story, many of them do know now. we have to try to make sure that they all know in the hope that somewhere we will find a sympathetic ear connected to an open heart, someone who can begin to turn this decision around in the days that are left before isabel is scheduled to be deported to her death. politics of governing is far more complex than the politics of campaigning. and the politics of campaigning, you are just trying to beat the other side. the politics of governing, you are trying to persuade the other side. in your own lives you know the tone and vocabulary that you adopt for persuasion is very different from the tone that you bring to open argument.