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'No regrets': Mom shares epic road trip with terminally ill daughter wtvm.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from wtvm.com Daily Mail and Mail on Sunday newspapers.
Dying Patients With Rare Diseases Struggle to Get Experimental Therapies theepochtimes.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from theepochtimes.com Daily Mail and Mail on Sunday newspapers.
Dying patients struggle to get experimental therapies detroitnews.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from detroitnews.com Daily Mail and Mail on Sunday newspapers.
Jul 15, 2021 At 15, Autumn Fuernisen is dying. She was diagnosed at age 11 with a rare degenerative brain disorder that has no known cure or way to slow it down: juvenile-onset Huntington’s disease. “There’s lots of things that she used to be able to do just fine,” said her mom, Londen Tabor, who lives with her daughter in Gillette, Wyoming. Autumn’s speech has become slurred and her cognitive skills slower. She needs help with many tasks, such as writing, showering and dressing, and while she can walk, her balance is off. Autumn has been turned down for clinical trials because she is too young. ....