Live Breaking News & Updates on மெலிசா ஹோகன்

Stay updated with breaking news from மெலிசா ஹோகன். Get real-time updates on events, politics, business, and more. Visit us for reliable news and exclusive interviews.

Dying Patients With Rare Diseases Struggle to Get Experimental Therapies


Jul 15, 2021
At 15, Autumn Fuernisen is dying. She was diagnosed at age 11 with a rare degenerative brain disorder that has no known cure or way to slow it down: juvenile-onset Huntington’s disease.
“There’s lots of things that she used to be able to do just fine,” said her mom, Londen Tabor, who lives with her daughter in Gillette, Wyoming. Autumn’s speech has become slurred and her cognitive skills slower. She needs help with many tasks, such as writing, showering and dressing, and while she can walk, her balance is off.
Autumn has been turned down for clinical trials because she is too young. ....

United States , Christina Bennett , Lou Gehrig , Londen Tabor , Lisa Kearns , Melissa Hogan , Jess Rabourn , Kaiser Health News , Drug Administration , Kaiser Family Foundation , York University , Autumn Fuernisen , New York University , Drugmaker Biogen , Merit Cudkowicz , Massachusetts General Hospital , United States Were , Cali Orsulak , Policy Analysis , ஒன்றுபட்டது மாநிலங்களில் , கிறிஸ்டினா பென்னட் , லூ கேஹ்ரிக் , லிசா கர்ந்ஸ் , மெலிசா ஹோகன் , கைசர் ஆரோக்கியம் செய்தி , கைசர் குடும்பம் அடித்தளம் ,